To everyone....

I write this with a very heavy heart this morning, the unknown is a scary thing.....

We leave today for Children's hospital in New Orleans not knowing when we will return. After all the worry over the kidney stones I finally talked to a Doctor from Michigan yesterday who assured me this situation in not critical at this very moment. He knows the urologist in New Orleans that we will see in the next few days. Nathan, once again, has presented us with a much bigger issue.

As most of you know, we have known Nathan needs another heart operation to close the hole(ASD) which his body battles against. Although his doctors wanted to wait until he was a year old, or older, it does not appear this is going to be possible.

The complications Nathan continues to present all tie into the ASD. The meds caused the kidney stones. He must have the meds to control the ASD. He still only weighs 9 pounds. No matter what we do the ASD is making it impossible for him to gain. His cardiologist has called the surgeons in New Orleans and is turning this back to them. I have spoke with the surgeons nurse this morning and they want us to come today to see the Urologist. They are going to begin the work up to schedule the surgery. The first available date they have now is July 13th. They have to decide if the kidney issues need to be handled first or if they need to repair the heart. They think they will need to do the heart first.

This definitely is not the news we wanted to hear, but we knew it was coming. I am not shocked by this. Looking at Nathan I know this is what must be done. It doesn't make it any easier, but I know the doctors are right. We leave today and will probably be home tomorrow at the latest. They will most likely schedule surgery and begin the process that Nathan will need to prepare.
All the prayers Nathan has received for healing, this may be God's way of doing so. He is the only one who has control and can heal him.

Dana, I have the prayer cloth and I will keep it close to us to have the comfort of knowing the prayers that were said and are being said for our little one.


I will keep everyone updated


Thanks to everyone,
Julie and Sal