New Development

Little Nathan continues to present new problems just to keep everyone worried about him. Yesterday afternoon he became extremely fussy and ended up screaming for almost 7 hours!!! At first we thought it was gas pains, then maybe the formula...nothing seemed to help. Finally he went to sleep around 10:00pm but woke up a few times and seemed to be hurting. This morning was the same so I took him into his cardiologist. After doing an echo he found the problem. The medical term is Postpericardiotomy Syndrome. It was explained that he has inflammation of the heart lining or wall. Dr. Brumund said this is very unusual( go figure..everything with Nate is) and occurs in only about 30% of patients after heart surgery, and hardly ever in children under two. He put Nate on a steroid for the next five days and said this should clear it up. He also gave us a heart monitor for Nate to wear for 24 hours so he can evaluate his heart rate. He said he spoke to the surgeons nurse and she said Nathan has a heart block and this is the reason his heart rate has been dropping into the 50's. Nice info to know don't ya think??? Anyway, we will go back to the doc on Monday to see if the inflammation is clearing up and get the results of the monitor. Nathan is very irritable and is in a lot of pain from this. It's amazing the pain he has felt in his little life. Most adults haven't had to go through some of what he has! He proves his strength every day! I just pray these are minor issues that can be corrected with meds or something VERY simple! Please keep him in your prayers Oh, I am still trying to get some pics up but my mom keeps forgetting to bring me her camera so I can download them on my pc!! Love ya mommy!!!